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Clinical Trial Story Time: A Friendly Intro for Your Child

If you’ve recently enrolled your child in a clinical trial, you may be wondering how to best prepare them for the experience. This blog aims to help you with that effort. The sections below are designed to be read directly to younger children. 

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What Is a Clinical Trial?

A clinical trial is when scientists, doctors, and people who are sick get together to find out how well a new medicine helps people feel better. 

Clinical trials … 

  1. Are the only way to make sure new medicines make people healthy and happy. 
  2. Find new ways to help people who didn’t have a way to feel better before start feeling better now 
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Why Should You Be Part of a Clinical Trial?

In the world of clinical trials, one of the most special things is called “research as care.” When kids like you have health challenges, clinical research can be a great way to get the very best care in the world that can’t be found anywhere else! The trial team helps you feel comfortable and cared for, and you help them find out more about how well the new medicine works. It’s teamwork that’s meant to help you — and lots of other kids around the world — feel better. 

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What Will Happen During the Clinical Trial?

At the start of the trial, the doctor’s team will talk to you all about what to expect. You will learn about how often you’ll visit them in person, some things you might get to do from home, and you’ll get to know some of the helpers who will be with you along the way. You’ll also learn about the different ways the study team will find out more about the medicine with your help! 

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Who Can Answer My Questions?

You can ask as many questions as you want during the clinical trial. You will have a friendly study buddy who you can always ask any questions you have. And don’t worry! You don’t have to think of all your questions when you meet your helper. Even if you think of a question later, you can ask any time. 

Final Note for Parents and Caregivers 

Do you or your child have additional questions or concerns about the clinical trial process? Visit our Resources page, talk to your doctor, and consider working with a patient advocate

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