The American Lung Association’s mission is to save lives by improving lung health and preventing lung disease. We do this through education, advocacy, and research.
The National Heart, Lung, and Blood Institute (NHLBI) conducts and supports research that expands our understanding of lung biology and how lung diseases start and progress, as well as studies and clinical trials that lead to new and improved ways to diagnose, treat, and prevent lung diseases.
Our commitment is to improve the quality and duration of life for those suffering from chronic respiratory disease. Through research sponsored by National Institutes for Health (NIH), industry, foundations, and our investigators, we partner with healthcare providers and study participants to improve patient outlook.
Tufts Medical Center is an internationally-respected academic medical center – a teaching hospital where we pride ourselves not only in the sophistication of the care we provide but the compassionate way in which we provide it. We care for all patients from the tiniest newborns to centenarians.
Fueled by passion and urgency, National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
RDRI’s mission is to offer individuals the opportunity to participate in clinical research by managing scientifically feasible and ethical clinical trials.
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organizations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilizing the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.
As patients, family members, clinicians and researchers, we are united by a single purpose — solve the greatest challenges and unmet needs in rare disease patient care, treatment and research. NORD is a national steward and a steadfast partner helping those who battle and care for rare disease feel seen, heard, supported and connected. We’re a full-service, mission-driven nonprofit reimagining a future where every person with a rare disease and their families live their best lives.
Global Genes provides hope for the more than 400 million people affected by rare disease around the globe. We fulfill our mission by helping patients find and build communities, gain access to information and resources, connect to researchers, clinicians, industry, government, and other stakeholders, share data and experiences, stand up, stand out, and become effective advocates on their own behalf.
The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations is a collaborative initiative among sponsored Centers of Excellence in the field of holoprosencephaly. The goal of the Carter Centers is to learn as much as possible about patients afflicted with HPE and their families in order to improve lives and conquer this disorder.