Pediatric Practice Research Group: Improve lives of Children and Their Families

The mission of Stanley Manne Children’s Research Institute at Ann & Robert H. Lurie Children’s Hospital of Chicago is to generate new knowledge and translate advancements in the prevention, diagnosis, and treatment of diseases that affect children’s health through adolescence and adulthood. Our multidisciplinary teams are committed to making discoveries that will improve the lives of children and their families.  

The Next Step in Our Evolution: Research Building IV Now Open

At Nationwide Children’s Hospital, we aspire to create the best outcomes for children everywhere. This means families come to Nationwide Children’s from around the globe knowing they will get the highest quality care. It means we will reach to cure rare diseases. It means we will sequence a child’s tumor to select the best care pathway. It means we will strive to make an entire population healthier, not just through their physical health, but also in their mental health. It means we will redefine the role of the children’s hospital in the achievement of optimal health. 

Global Genes

Information, resources, and community for those affected by a wide range of rare diseases. Global Genes provides hope for the more than 400 million people affected by rare disease around the globe. We fulfill our mission by helping patients find and build communities, gain access to information and resources, connect to researchers, clinicians, industry, government, and other stakeholders, share data and experiences, stand up, stand out, and become effective advocates on their own behalf.

Childhood Rare Disease Advocacy

The Little Miss Hannah Foundation’s mission is to help enhance the quality of life for young children diagnosed with rare, life-limiting, or undiagnosed complex medical needs, as well as children who have been placed in hospice or palliative care. The foundation also gives parents the necessary tools and financial assistance to empower them to meet their child’s unique medical and lifestyle needs, as well as provide support resources and special attention for their other children. We also work to provide support groups for all members of the family by providing fun, family-focused and sibling-focused events and activities.