Stories From the Heart: Educational Resources for Patients

The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. 

Finding Treatments for Polycystic Kidney Disease

PDK Foundation is an organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD). We fund research, education, advocacy, support, and awareness on a national and local level. We fund basic and clinical research, nephrology fellowships, and scientific meetings with a simple goal: to discover and deliver treatments and a cure for PKD. 

Hot Topics in Kidney Health

Fueled by passion and urgency, National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change. 

Empower Patients by Creating a Landscape for Clinical Trials

NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care. Founded by a group of committed patient parents, NephCure has invested more than $40 million in kidney disease research and helped create a landscape where there are now new treatments and more than 60 interventional drug trials for rare kidney disease. 

Rare Disease News

As patients, family members, clinicians and researchers, we are united by a single purpose — solve the greatest challenges and unmet needs in rare disease patient care, treatment and research. NORD is a national steward and a steadfast partner helping those who battle and care for rare disease feel seen, heard, supported and connected. We’re a full-service, mission-driven nonprofit reimagining a future where every person with a rare disease and their families live their best lives.

Greater Gift

Get insights on how clinical research has impacted individuals or visit the resource library for information on diversity in clinical trials and more. Greater Gift started in 2010 with a simple idea: celebrate the patients in clinical trials and the research professionals who support them in order to reinforce the impact of their participation in research. Our mission has grown through our celebration and community outreach programs to increase awareness of clinical research, especially among underrepresented communities. Greater Gift works to ensure all ethnic, racial, and marginalized populations are represented equally in research, so that medicines, treatments, and medical devices are effective for everyone.

City of Hope Patient Stories

The mission of City of Hope is to transform the future of cancer care. Each day, we work to turn science into a practical benefit, hope into reality. We accomplish that by unifying the branches of biomedical research, treatment and academia. Having scientists, treatment staff and manufacturing facilities in convenient proximity, our treatment advances can travel from laboratory to patient with life-saving speed.